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  • Fundraising Events
  1. Support Our Work
  2. Fundraise for Us

Fundraising Events

Turn Your Challenge into Life-Changing Support

We are only a small charity, and we rely on the support of fundraisers to help us to continue our mission supporting and advocating for individuals and families living with ichthyosis.

Whether you run, trek, jump or cycle, every mile, every step, and every leap you take helps families get the care, support, and hope they deserve!

Click on the regions below to find challenge events across the UK. There's everything from family friendly events, to challenging marathons, and even some ultra challenges - there are over 800 to choose from!

If you have any questions please email [email protected] and we will try our best to help you. 

London

South East

South

South West

West

Midlands

East of England

North West

Yorkshire

North East

Wales

Scotland

Northern Ireland

Overseas

Virtual

Can’t find an event that suits you?

Why not organise your own event! Whether it's a sponsored cycle, an event in your local community or you give something up for a month, your fabulous support will make a massive difference to all those living with ichthyosis. 

If a physical challenge isn't your thing, we have lots more ideas to inspire you!

Tea Party or Bake Sale

A-Z of ideas

Online fundraising

Published: 23rd February, 2025

Updated: 3rd May, 2025

Author: Mandy Aldwin

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https://www.ichthyosis.org.uk/fundraising-events
Fundraising Events

Latest

  • Faces of Ichthyosis: Paige

    Faces of Ichthyosis: Paige

    Explore Paige's journey with ichthyosis, embracing individuality and strength while overcoming life's challenges.

  • Faces of Ichthyosis: Elliot

    Faces of Ichthyosis: Elliot

    Elliot’s story highlights the resilience needed to live with ichthyosis and the challenges of daily skin care. He hopes people will look beyond his skin and better understand the impact of the condition.

  • Faces of Ichthyosis: Anthony

    Faces of Ichthyosis: Anthony

    Anthony’s story is one of determination, honesty, and quiet strength - showing that ichthyosis may shape daily life, but it doesn’t limit what’s possible.

  • Faces of Ichthyosis: Rosemary

    Faces of Ichthyosis: Rosemary

    Rosemary’s story is raw, direct, and deeply human - reminding us that behind every visible difference is a life just as rich, complex, and worthy of connection as any other.

Related

  • Children's Activity Camps

    Children's Activity Camps

    The residential activity camps are designed to be exciting and fun whilst encouraging social interaction and promoting personal development for children affected by ichthyosis aged 8-16 years.

  • Upcoming Member Events in 2026

    Upcoming Member Events in 2026

    Discover ISG's 2026 events: Cuppa & Chat mornings, online sessions, regional gatherings, and children's activity camps. Stay connected and involved!

  • Leaving a Gift in your will

    Leaving a Gift in your will

    Planning ahead lets you make a lasting impact. Including the Ichthyosis Support Group (ISG) in your will helps ensure ongoing support, advocacy, and research for those affected by ichthyosis.

  • Awareness Cards

    Awareness Cards

    Ichthyosis Awareness Cards from the Ichthyosis Support Group (ISG) are designed to help individuals living with ichthyosis easily explain their condition to others.

  • Host A Tea Party

    Host A Tea Party

    Hold a fundraising tea party or bake sale to enable further research into ichthyosis, and help us continue supporting families and individuals affected by ichthyosis.

  • 25th Anniversary Year Wristband

    25th Anniversary Year Wristband

    Red, blue and silver in colour these wristbands celebrate our 25th Anniversary Year.

  • 25th Anniversary Year Metal Pin Badge

    25th Anniversary Year Metal Pin Badge

    Wear our special celebratory badge and raise awareness of ichthyosis. Double butterfly clip fastening.

  • Raising awareness with Theo

    Raising awareness with Theo

    During Ichthyosis Awareness Month, you can help raise understanding and support by bringing Theo, the Ichthyosis Support Group mascot, to life.

  • Painting stones

    Painting stones

    Paint rocks with the ISG logo and website and place them while you're out and about to help raise awareness.

  • Medical Alert Card

    Medical Alert Card

    A downloadable card to help support you and the medical professionals who care for you during non related dermatology appointments.

Most read

  • Treatments Used in Ichthyosis

  • Palmoplantar Keratoderma (PPK)

  • X-linked Ichthyosis

  • Vitamin D

    Vitamin D

    Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.

  • Harlequin Ichthyosis

  • Inheritance of Ichthyosis Factsheet

  • Ichthyosis Overview

  • Eye Management in Ichthyosis

  • Udrate Cream

    We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.

  • New product - Udrate

    New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

This article explains the recent changes in how we name some inherited skin conditions. This includes conditions like the ichthyoses and palmoplantar keratodermas. Read more

Published: 3rd September, 2025

Updated: 4th October, 2025

Author: Mandy Aldwin

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Ichthyosis Support Group, First Floor Rubra One, Mulberry Business Park, Fishponds Road, Wokingham RG41 2GY UK

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[email protected]

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