Thank you for your interest in sharing your experience of living with ichthyosis. We’re grateful for your willingness to help others by telling your story. Personal experiences like yours offer reassurance, support, and understanding to those living with ichthyosis and their families. Please complete the questions below to help us understand your journey and experiences of living with ichthyosis. Your responses will help us create a meaningful and impactful case study to feature on our website, and possibly in our newsletter or e-bulletin. We may contact you for further details but we will request at least one photo to accompany your story please. For information on how we use your personal data, please see our Privacy Policy at the bottom of the page. Questions marked with an asterisk (*) are required.
We will not use your story or pass the details recorded in this form, or provided to us at a later date, to any other organisation without your permission. Your contact information will be stored on our database and you can withdraw your consent at any time. To find out more about how we use your personal information, please read our privacy policy at the bottom of this website.