Thank you for taking the time to share your experiences by completing this form. We know that by reading other people’s experiences of living with ichthyosis it can be reassuring and of comfort to others. Please answer the following questions so we can fully understand your experience of living with ichthyosis. We ask for your details in order to contact you about sharing your story and we may contact you for a photo to accompany your story. Your story will be featured on our website and may be featured in our newsletter or e-bulletin. To find out more about how we use your personal information, please read our privacy policy at the bottom of our website. Questions marked with an asterisk (*) are mandatory.
What’s your story? This is your opportunity to tell us about living with ichthyosis. Please give us an overview of your experience so we can fully understand what you’ve been through. You may like to think about symptoms, diagnosis, the impact of having ichthyosis at different times of your or your child’s life. Does ichthyosis cause any everyday problems or issues? Does ichthyosis affect the decisions you make in life? Please tell us the positive and not so positive things. (500 approx)
We will not use your story or pass the details recorded in this form, or provided to us at a later date, to any other organisation without your permission. Your contact information will be stored on our database and you can withdraw your consent at any time. To find out more about how we use your personal information, please read our privacy policy at the bottom of this website.