People like you make it possible for the Ichthyosis Support Group (ISG) to continue helping individuals and families living with ichthyosis every day, all over the UK and Ireland. You can make a real difference and we want to thank you in advance.

You may not be aware but we have to generate the funds to finance everything we do. This is done by applying for grants, receiving sponsorship from pharmaceutical companies but by far the biggest contribution to our income is generated by those members who actively participate in fundraising activities. The more funds we can generate the more we can do to support research, raise awareness and introduce new support structures for our members.

The ISG is the only charity in the UK and Ireland supporting families living with ichthyosis and fundraising allows us to also fund research to improve the lives of those living with ichthyosis. In a recent survey, members stated that funding research into improving the treatments available to manage the condition was their top priority.  

Set up an Fundraising page on the ISG website by clicking on the "Fundraise" button. Using our online form is by far is the easiest way to get sponsorship from far and wide and the collecting is done for you – so no chasing up sponsors!

Or to simply make a one off or regular donation click the "Donate" button.

Thank you again for making time to show your support for those living with ichthyosis.

The ISG is the only charity supporting those living with ichthyosis in the UK and Ireland. Your donation will contribute to the support offered by the ISG and help to fund research into these extremely rare conditions.

"When our Son was diagnosed with ichthyosis many years ago we didn't know where to turn. The ISG provided us with both support and information to help us better understand the condition. That enabled us to to provide better care for his needs. We feel it's important to fundraise for the ISG so that we can help other families in our situation in the future".


- Edel and John Kenny

ISG is unique – we ensure that every penny you raise will be spent directly on providing support for our members. This is our 100% guarantee to you.

£100 Can fund 10 information packs for schools and families affected by ichthyosis, helping the child to attend school and manage their condition with the support of the school.

£250 Can fund the provision of support, information and advice to 10 new families affected by ichthyosis. We are often contacted by parents of babies born with the condition that have nowhere else to turn; the support we provide gives them hope and reassurance.

£500 Can support two families to attend our annual event enabling families to meet, share experiences and learn from the expert medical professionals.

£1,000 Can fund five children affected by ichthyosis to attend an ISG residential camp, helping to gain greater confidence, increase self-esteem and interact with other children affected by ichthyosis.

£5,000 Can help fund research projects. We have grants available to researchers undertaking research relevant to ichthyosis patients.

Good luck with your endeavours – just follow our Fundraising Guide and you’ll be fine, and remember, we are here to help you along the way. Please do not hesitate to get in touch. Don't forget to tell us about your online fundraising here.