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2021 Newsletters
Pre-order Luke and the tiger storybook

Luke and the tiger is an inspirational storybook about a boy with ichthyosis for children aged 3-7 years. Luke wakes up in the middle of the night, because there is a tiger next to his bed, who asks for help. During their adventure, they meet other wild animals and discover that Luke is not the only one with a special skin.
A Needs Assessment Tool for Caregivers of Children with Ichthyosis

Carleen Walsh, PhD Researcher invites caregivers of children affected by ichthyosis to test a new needs assessment e-tool to make sure it is reliable and valid.
Psychosocial support research

If your child has been diagnosed with a skin condition, then you are invited to take part in a research study exploring the experiences of psychosocial support for children and their carers.