Our website enables you to fundraise online simply and quickly. In an increasingly cashless society it's important to be able to collect sponsorship and donations online. It also takes the hard work out of having to chase sponsors. Our website is dedicated to giving you the technology you need to raise more to help us support individuals and families living with ichthyosis. With our website you can raise money for us, and share your appeal in just minutes.

Donate or fundraise

Any donation you are able to make will be gratefully received and help us continue our work supporting families living with ichthyosis. Thank you again.

The ISG is unique – we ensure that every penny you raise will be spent directly on providing support for our members. This is our 100% guarantee to you.

£100 Can fund 10 information packs for schools and families affected by ichthyosis, helping the child to attend school and manage their condition with the support of the school.

£250 Can fund the provision of support, information and advice to 10 new families affected by ichthyosis. We are often contacted by parents of babies born with the condition that have nowhere else to turn; the support we provide gives them hope and reassurance.

£500 Can support two families to attend our annual event enabling families to meet, share experiences and learn from the expert medical professionals.

£1,000 Can fund five children affected by ichthyosis to attend an ISG residential camp, helping to gain greater confidence, increase self-esteem and interact with other children affected by ichthyosis.

£5,000 Can help fund research projects. We have grants available to researchers undertaking research relevant to ichthyosis patients.

"When our Son was diagnosed with ichthyosis many years ago we didn't know where to turn. The ISG provided us with both support and information to help us better understand the condition. That enabled us to to provide better care for his needs. We feel it's important to fundraise for the ISG so that we can help other families in our situation in the future".

 - Edel and John Kenny

Donate or fundraise

Giving to charity through Gift Aid

Gift Aid increases the value of donations to charities and Community Amateur Sports Clubs (CASCs) by allowing them to reclaim basic rate tax on your gift. If you pay higher rate tax you can claim extra relief on your donations. If you claim age-related allowances or tax credits, Gift Aid donations can sometimes increase your entitlement.

Questions? (These links will take you to another website)

• How Gift Aid works
• How to make a donation using Gift Aid
• Making sure you’ve paid enough tax to use Gift Aid
• Claiming back higher rate tax
• Carrying back Gift Aid donations to the previous tax year
• Telling HMRC about your Gift Aid donations
• Donating tax refunds to charity through your tax return
• Contacting the HMRC Charities Helpline
• More useful links

How Gift Aid works

The Gift Aid scheme is for gifts of money by individuals who pay UK tax. Gift Aid donations are regarded as having basic rate tax deducted by the donor. Charities or CASCs take your donation – which is money you’ve already paid tax on – and reclaim the basic rate tax from HM Revenue & Customs (HMRC) on its ‘gross’ equivalent – the amount before basic rate tax was deducted.

Basic rate tax is 20 per cent, so this means that if you give £10 using Gift Aid, it’s worth £12.50 to the charity. For donations between 6 April 2008 and 5 April 2011 the charity or CASC will also get a separate government supplement of three pence on every pound you give.