Hello Beautiful People, as most of you know my daughter Robyn suffers with Nethertons Syndrome (a form of Ichthyosis).
Myself and son Evan (8) will be climbing Snowdon on 1st May 2022 with the Ichthyosis Support Group for their 25th anniversary of providing help and support to those affected with Ichthyosis and their families. We will be fundraising so their amazing work is able to continue and we would be extremely grateful if you could help us by clicking the donate button at the top of this page 🥰 Thankyou and have a great day 😘 🐠🏔💕


The Ichthyosis Support Group helps families and individuals living with a form of ichthyosis, a rare genetic skin condition.
Ichthyosis, pronounced Ick-thee-o-sis describes a group of conditions in which the skin is dry and scaly. Lots of people have dry skin conditions (such as eczema or psoriasis) but they tend to be patchy and they come and go. By contrast, in ichthyosis the scaling is continuous and usually affects the whole body. There is no cure for ichthyosis at present, but it is possible to manage the symptoms. The main aim of treatment is to improve the condition of the skin (make it less dry and less scaly, for example) and to relieve discomfort. Ichthyosis in the severe forms can be life threatening, but even in the milder forms a strict daily skin care regime is needed and having a visible skin condition can prove psychologically challenging.

Leanne Baker