I have decided for my 30th Birthday I wanted to abseil abseil 100m down the Spinnaker Tower, I will be doing this on 19/6/2021 and doing it for a charity like this will make it that bit more special, I have lived with Ichthyosis Vulgaris from birth, It is something I have struggled with my whole life. It can cause skin infections caused by simple things like washing up or bathing my children, Lots of people have dry skin conditions (such as eczema or psoriasis) but they tend to be patchy and they come and go. By contrast, in ichthyosis the scaling is continuous and usually affects the whole body. There is no cure for ichthyosis at present, but it is possible to manage the symptoms. The main aim of treatment is to improve the condition of the skin (make it less dry and less scaly, for example) and to relieve discomfort. Ichthyosis in the severe forms can be life threatening, but even in the milder forms a strict daily skin care regime is needed and having a visible skin condition can prove psychologically challenging. Edd Quirke