During Ichthyosis Awareness Month we will be encouraging everyone to get involved in raising awareness and fundraising. We will have all kinds of things and below are a few ideas. We are also introducing some new initiatives to help you manage your ichthyosis. Scroll down for things you can get involved in.
Simply post a photo or video of you, your friend, relative or child with ichthyosis, using hashtag #IchthyosisAwareness. Download and print the IAM Worldwide logo, and hold your country’s flag in a selfie. Why not shoot a short video saying “My name is ….., I/my child has/have ichthyosis and IAM from the UK”.
Let the world know where you are from and that you have or support someone with ichthyosis.
Visit and share to the ISG and IAM Worldwide Facebook pages.
Use our IAM social media graphics all month long!
Are you on Facebook? Twitter? IAM is Going Global! Use #IchthyosisAwareness in your posts.
Bake Holiday Weekend – love baking? Why not bake during the bank holiday weekends in the ISG? Sell your cakes, donate the proceeds to the ISG and raise awareness for people living with ichthyosis. Donate your fundraising here.
Educate by distributing leaflets, chat with friends and work colleagues about ichthyosis and how it affects you or someone you know. Send us your story of living with ichthyosis and we will publish it online, dont forget to send us a photo!
Pledge to help us continue to support families and individuals living with ichthyosis by signing up to give a monthly donation.
Meet Up: Organise a local member meet up, take photos and share online. Encourage members near you to get together! Remember to use the hashtag #ichthyosisawareness
Paint rocks with the ISG logo and website and place them while you're out and about to help raise awareness.
It's Ichthyosis Awareness Month! Colour Theo in to raise awareness and display him in your windows.
A downloadable card to help support you and the medical professionals who care for you during non related dermatology appointments.