2018 Newsletters

Summer Newsletter_2018

Latest

Educational Health and Care Plan Discussion and Q&A

Do you have questions about EHCPs? Register and join us online.
Members Events 2024

Put these dates in your calendar to join our member events in 2024
Positive Data Revealed in Quoin Pharma's Netherton Syndrome Study

Quoin, a specialty pharmaceutical company focused on rare and orphan diseases, announces additional positive clinical data from its ongoing open-label study evaluating the safety and efficacy of QRX003 as a potential treatment for Netherton Syndrome (NS).
Dr Fiona Browne

Related

Most read

Treatments Used in Ichthyosis
Vitamin D

Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.
New product - Udrate

Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.
Palmoplantar Keratoderma (PPK)
Ichthyosis Overview
X-linked Ichthyosis
Harlequin Ichthyosis
Inheritance of Ichthyosis Factsheet
Eye Management in Ichthyosis
Udrate Cream

We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.