2020 Newsletters

Newsletter Spring 2020

Newsletter Autumn 2020

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Members Events 2024

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Positive Data Revealed in Quoin Pharma's Netherton Syndrome Study

Quoin, a specialty pharmaceutical company focused on rare and orphan diseases, announces additional positive clinical data from its ongoing open-label study evaluating the safety and efficacy of QRX003 as a potential treatment for Netherton Syndrome (NS).
Dr Fiona Browne

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Treatments Used in Ichthyosis
Vitamin D

Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.
New product - Udrate

Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.
Palmoplantar Keratoderma (PPK)
Ichthyosis Overview
X-linked Ichthyosis
Harlequin Ichthyosis
Inheritance of Ichthyosis Factsheet
Eye Management in Ichthyosis
Udrate Cream

We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.