Researchers from the Centre for Appearance Research at UWE Bristol are looking for adults based in the UK with ichthyosis who are experiencing psychological / social difficulties related to looking different, to test ACT It Out, a prototype mobile app. Read more
Keep up to date with the latest news in Dermatology, Ichthyosis and with the Ichthyosis Support Group. Here's a selection of our most recent information, news and activities.
Online interactive group discussion sessions providing support to those affected by ichthyosis. Read more
Interactive workshop for parents and young people, consisting of two sessions, offering self-esteem and confidence building techniques on Saturday 26th September. Read more
Following the huge success of our first quiz back in May we invite you to meet up virtually with your "ichthyfamily" for this fun, exciting family friendly quiz on Saturday 26th September. Read more
Reluctantly we have decided to cancel the ISG Family Day which had been rescheduled for Saturday 26th September 2020 due to the changeable and ongoing concerns regarding Covid-19 Read more
Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others. Read more
Colour Theo in to raise awareness for Ichthyosis Awareness Month and display him in your windows alongside your rainbows. Read more
Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis. Read more
A downloadable card to help support you and the medical professionals who care for you during non related dermatology appointments. Read more
Paint rocks with the ISG logo and website and place them while you're out and about to help raise awareness. Read more
There is no reason to suspect that just having ichthyosis puts you at greater risk of catching COVID-19. Please read our full advice. Read more