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  • WaterSure Scheme

    WaterSure Scheme

    WaterSure is a scheme which helps people on specific benefits on a water meter (or waiting for one to be installed) with their water bills. Read more

  1. Home
  2. Latest News

Latest News

Keep up to date with the latest news in Dermatology, Ichthyosis and with the Ichthyosis Support Group. Here's a selection of our most recent information, news and activities.

Vitamin D

Vitamin D

Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency. Read more

Published: 15th February, 2021

Updated: 25th February, 2021

Author: Liz Dale

Related topics:
  • Treatments and Caring for Ichthyosis
  • Homepage-New-Stories
  • Latest News
WaterSure Scheme

WaterSure Scheme

WaterSure is a scheme which helps people on specific benefits on a water meter (or waiting for one to be installed) with their water bills. Read more

Published: 22nd November, 2020

Updated: 25th November, 2020

Author: Mandy Aldwin

Related topics:
  • Homepage-New-Stories
  • Latest News
  • Information For Parents
Mental Health of Individuals With Facial Differences

Mental Health of Individuals With Facial Differences

Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others. Read more

Published: 31st July, 2020

Updated: 25th November, 2020

Author: Liz Dale

Related topics:
  • Participate in research
  • Latest News
Body Image Dissatisfaction

Body Image Dissatisfaction

Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis. Read more

Published: 28th May, 2020

Updated: 24th November, 2020

Author: Liz Dale

Related topics:
  • Participate in research
  • Latest News
Raising awareness with Theo

Raising awareness with Theo

Colour Theo in to raise awareness for Ichthyosis Awareness Month and display him in your windows alongside your rainbows. Read more

Published: 27th May, 2020

Updated: 8th June, 2020

Author: Mandy Aldwin

Related topics:
  • Raise Awareness
  • Ichthyosis Awareness Month (IAM)
  • Latest News
Medical Alert Card

Medical Alert Card

A downloadable card to help support you and the medical professionals who care for you during non related dermatology appointments. Read more

Published: 30th April, 2020

Updated: 28th May, 2020

Author: Mandy Aldwin

Related topics:
  • Treatments and Caring for Ichthyosis
  • Ichthyosis Awareness Month (IAM)
  • Caring For Ichthyosis
  • Latest News
Painting stones

Painting stones

Paint rocks with the ISG logo and website and place them while you're out and about to help raise awareness. Read more

Published: 18th May, 2020

Updated: 28th May, 2020

Author: Mandy Aldwin

Related topics:
  • Ichthyosis Awareness Month (IAM)
  • Latest News
COVID-19 and ichthyosis

COVID-19 and ichthyosis

There is no reason to suspect that just having ichthyosis puts you at greater risk of catching COVID-19. Please read our full advice. Read more

Published: 12th May, 2020

Updated: 21st May, 2020

Author: Mandy Aldwin

Related topics:
  • Latest News
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Showing 10 of 8

Latest

  • A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

    A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

    Participants needed for a study which aims to better understand the frequency and severity of distress associated with these conditions, and to try and understand what might contribute to this.

  • Donations for Steve to the ichthyosis society

    Donations for Steve to the ichthyosis society

    My son Steve Evans unfortunately recently died of covid, he had ichthyosis. We would like to raise more awareness of the issues that people have with this disease..

  • Vitamin D

    Vitamin D

    Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.

  • Prescribing issues - NHS England

Most read

  • Accessibility

  • Seasonal Winter Get Together

    Seasonal Winter Get Together

    Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz.

  • Vitamin D

    Vitamin D

    Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.

  • The Giving Room

    The Giving Room

    If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.

  • Donate

    Donate

    As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.

  • Privacy Policy

  • Meet our members

    Meet our members

    Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

  • Body Image Dissatisfaction

    Body Image Dissatisfaction

    Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.

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  • Example - Our impact

    Inspire visitors with all the amazing change you've achieved. It's your chance to show off!

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