These are a collection of members whose fundraising and awareness raising activities and events have been featured in the media.
Brave Ellie Luther gives a big smile to show just what a little fighter she is Read more
Chelmsford School Children Dress Loud and Lairy For CharityChelmsford loud and lairy CHILDREN at Westlands Community Primary School banded together last week to dress loud and lairy to raise over £330 for a charity that helps a baby with a rare skin condition. Read more
Father-in-law saves Melanie’s charity walk. When poorly Melanie Bradley asked her father-inlaw to support her with a sponsored event, she got more than she bargained for. Read more
Family of Maldon toddler with potentially fatal skin condition raise money for the Ichthyosis Support GroupHolby Ichthycyclotron 2014 A family are getting on their bikes to raise awareness of a potentially fatal skin condition. Read more
Replace with your content Read more
I have just been diagnosed as having Ichythyosis X-Linked in the last few weeks. I am 46 years old man and have suffered since birth on my legs, arms and trunk. Read more