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  1. Blog

Case studies

These are a collection of members whose fundraising and awareness raising activities and events have been featured in the media.

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Latest

  • A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

    A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

    Participants needed for a study which aims to better understand the frequency and severity of distress associated with these conditions, and to try and understand what might contribute to this.

  • Donations for Steve to the ichthyosis society

    Donations for Steve to the ichthyosis society

    My son Steve Evans unfortunately recently died of covid, he had ichthyosis. We would like to raise more awareness of the issues that people have with this disease..

  • Vitamin D

    Vitamin D

    Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.

  • Prescribing issues - NHS England

    Prescribing issues - NHS England

    Some people with ichthyosis are experiencing problems obtaining cream, lotions and/or clothing garments on prescription from their GP.

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  • Accessibility

  • Seasonal Winter Get Together

    Seasonal Winter Get Together

    Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz.

  • Donate

    Donate

    As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.

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  • Body Image Dissatisfaction

    Body Image Dissatisfaction

    Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.

  • The Giving Room

    The Giving Room

    If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.

  • Cookie Policy

  • Example - Our impact

    Inspire visitors with all the amazing change you've achieved. It's your chance to show off!

  • Meet our members

    Meet our members

    Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

  • Example - Story/testimonial tips

    Inspire visitors with real stories that humanise the impact you have, then call them to action

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Ichthyosis Support Group
PO Box 1242
Yateley
GU47 7FL

+44 (0)845 602 9202
[email protected]

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© Copyright 2015 Ichthyosis Support Group (ISG) Registered Charity Number: 1142457
Ichthyosis Support Group is a company limited by guarantee | Registered in England and Wales | Company registration number 7609904