Caring For Ichthyosis

Condition Specific Information

Inheritance And Genetic Testing Information

Caring For Ichthyosis

Information For Parents

Talking To Your Doctor

Other

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Members Events 2024

Put these dates in your calendar to join our member events in 2024
Positive Data Revealed in Quoin Pharma's Netherton Syndrome Study

Quoin, a specialty pharmaceutical company focused on rare and orphan diseases, announces additional positive clinical data from its ongoing open-label study evaluating the safety and efficacy of QRX003 as a potential treatment for Netherton Syndrome (NS).
Dr Fiona Browne
Polly Buchanan - Dermatology Nurse

Sunscreen Use in Ichthyosis

Sunscreens are used to reduce the risk of sunburn and reduce the risk of skin cancer. They also reduce skin ageing and skin darkening. Ideally sunscreen should be applied all year round as the sun’s rays can still penetrate through clouds in winter.
Caring For Ichthyosis

There is no cure for ichthyosis, but it can be treated and managed. There are many types of ichthyosis and each type is unique to each individual and depending on the type, may be inherited differently.
Medical Alert Card

A downloadable card to help support you and the medical professionals who care for you during non related dermatology appointments.