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  • Fundraising Events
  1. Home
  2. Fundraising Events

Fundraising Events

If you wish to take on a challenge for the Ichthyosis Support Group and help us support those affected by ichthyosis, this is the place for you! We have organised and have access to a variety of incredible challenges in the UK that will not only test your physical ability but also your mental endurance. Click on the event you are interested in.

If a challenge isn't your thing you could hold a tea party or bake sale? We have lots of other ideas at https://www.ichthyosis.org.uk/a-z-fundraising-ideas

Alternatively, if you are organising or participating in another event please set up your fundraising page here.

Host A Tea Party

Host A Tea Party

Hold a fundraising tea party or bake sale to enable further research into ichthyosis, and help us continue supporting families and individuals affected by ichthyosis. Read more

Published: 16th February, 2023

Updated: 17th March, 2026

Author: Mandy Aldwin

The Peak District Challenge

The Peak District Challenge

The Peak District Challenge is a running or trekking challenge that offers different distances: 25km (Copper), 50km (Bronze) 75km (Silver), 100km (Gold Ultra) or 100miles in 24 hours Ultra. Each distance has a time to try to beat, from 9 hours to hike 25km, up to 24 hours to run the huge 100mile Ultra Peak District Challenge. Read more

Published: 10th February, 2025

Author: Mandy Aldwin

Battersea Park 5k, 10k & Half Marathon

Battersea Park 5k, 10k & Half Marathon

Battersea Park is one of London’s most picturesque parks and has been a favourite course for those wanting to run a PB! The course is totally flat, offering the perfect opportunity to push yourself to a personal best. Starting and finishing at the Parks Bandstand this course laps the park making it easy to follow and great for any spectators to catch you flying round the course. Read more

Published: 10th February, 2025

Author: Mandy Aldwin

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Latest

  • Faces of Ichthyosis: Paige

    Faces of Ichthyosis: Paige

    Explore Paige's journey with ichthyosis, embracing individuality and strength while overcoming life's challenges.

  • Faces of Ichthyosis: Elliot

    Faces of Ichthyosis: Elliot

    Elliot’s story highlights the resilience needed to live with ichthyosis and the challenges of daily skin care. He hopes people will look beyond his skin and better understand the impact of the condition.

  • Faces of Ichthyosis: Anthony

    Faces of Ichthyosis: Anthony

    Anthony’s story is one of determination, honesty, and quiet strength - showing that ichthyosis may shape daily life, but it doesn’t limit what’s possible.

  • Faces of Ichthyosis: Rosemary

    Faces of Ichthyosis: Rosemary

    Rosemary’s story is raw, direct, and deeply human - reminding us that behind every visible difference is a life just as rich, complex, and worthy of connection as any other.

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  • Treatments Used in Ichthyosis

  • Palmoplantar Keratoderma (PPK)

  • X-linked Ichthyosis

  • Vitamin D

    Vitamin D

    Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.

  • Harlequin Ichthyosis

  • Inheritance of Ichthyosis Factsheet

  • Ichthyosis Overview

  • Eye Management in Ichthyosis

  • Udrate Cream

    We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.

  • New product - Udrate

    New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

This article explains the recent changes in how we name some inherited skin conditions. This includes conditions like the ichthyoses and palmoplantar keratodermas. Read more

Published: 3rd September, 2025

Updated: 4th October, 2025

Author: Mandy Aldwin

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Ichthyosis Support Group, First Floor Rubra One, Mulberry Business Park, Fishponds Road, Wokingham RG41 2GY UK

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