We hold exclusive events for members of the Ichthyosis Support Group. These include Family Conferences, Family Days, Children's Camps and varied exciting events online.
We are busy planning events so please follow us on social media to be the first to hear about event announcements.
To attend and receive full details about our events you must be a member. Please become a member at Become A Member Form
If you are a member please check your spam folders for our emails, because sometimes they can end up in there and you may miss our news and updates!
Read our reflection on another successful ISG Family Conference, a supportive, informative event connecting the ichthyosis community across generations. Read more
The residential activity camps are designed to be exciting and fun whilst encouraging social interaction and promoting personal development for children affected by ichthyosis aged 8-16 years. Read more
Discover ISG's 2026 events: Cuppa & Chat mornings, online sessions, regional gatherings, and children's activity camps. Stay connected and involved! Read more
This year, the Ichthyosis Support Group has hosted a variety of events aimed at supporting everyone affected by ichthyosis, from those newly diagnosed to those who have been living with ichthyosis long-term. Read more