Awards

National Lottery Award Winners

The National Lottery Awards are an annual search to find the UK’s favourite lottery funded projects. The Ichthyosis Support Group won the category of ‘Best Health Project’ in 2013. Read more

BMA Patient Information Awards

Patient Information Awards 2015 The ISG booklet, Ichthyosis: My Story was Commended. Read more

British Dermatological Nursing Group Team of the Year Award

The Ichthyosis Support Group won ‘Team Of The Year 2014’ Award. was awarded after attending the BDNG’s 3-day conference talking to dermatologists, registrars, dermatology nurses and others about ichthyosis, living with ichthyosis and the work and goals of the ISG Read more

Latest

Spinnaker tower abseil for the Ichthyosis Support Group

I'm setting myself this challenge of abseiling down the spinnaker tower to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition.

Climb Snowdon Challenge

Tick 'Climb a Mountain' off on your bucket list? Join us for a challenge to remember on 2nd May 2021.

Online ISG Family Day 2020 - Saturday 26th September

Online interactive group discussion sessions providing support to those affected by ichthyosis.

Mental Health of Individuals With Facial Differences

Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others.

Accessibility

Donate

As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.

Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

Privacy Policy

Body Image Dissatisfaction

Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.

The Giving Room

If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.

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Eye Management in Ichthyosis

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