We are setting up this fundraising page to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition. Two of our children live with this condition and the ISG has been amazing in supporting us with information and running events that help us to manage it.
Team ISG are taking part in the Thames Bridges Trek 2023 to raise awareness and funds for the Ichthyosis Support Group, which is a charity helping individuals and families living with all forms of Ichthyosis.
I'm going to be running Thames-bridges-trek 2023 to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition.
Raising funds to help support families who have a family member or friend with ichthyosis
On 29th May 2023, for Ichthyosis Awareness Month, I will be jumping 15,000 feet out of an aeroplane for the ISG.
Raising money for the great work the ISG do for all our members, giving help, support and advice in the world of ichthyosis !!
I'm setting myself this challenge of abseiling down the spinnaker tower to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition.
My son Steve Evans unfortunately recently died of covid, he had ichthyosis. We would like to raise more awareness of the issues that people have with this disease..
Hi all, we are participating in this challenge to raise money for the Ichthyosis Support Group (ISG), a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition.The charity is 25 years old this year so we are walking the 25km Thames Bridges Trek - this involves a long walk over 16 historical bridges along the River Thames.
I'm setting myself this challenge to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition.
We are setting ourselves this challenge to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition. The Kelsell lab group have previously performed research towards identifying the genetic causes of the ichthyoses.
I am raising funds for the Ichthyosis Support Group to celebrate their 25th year anniversary and support the amazing work they do