Here you will find comprehensive summaries of our online discussion sessions and information about upcoming discussions. These sessions are organised and brought to you by a team of experts and the Ichthyosis Support Group, all of whom give their time and share their knowledge voluntarily.
An online group discussion to talk about, share experiences of and share advice for living with the psychological impact of ichthyosis. Read more
The dermatology team from Birmingham Children's hospital shared their expertise with ISG members and answered questions to help them manage their hair and scalp problems. Read more
On Saturday 27th March 2021 members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise on ear care. Read more
Mr Malhotra led the online discussion with ISG members from across the globe, sharing his expertise and answering questions concerning problems with the management of eye care in those affected by ichthyosis. Read more