Online Discussion Sessions

Here you will find comprehensive summaries of our online discussion sessions and information about upcoming discussions.

Summary of Ear Care in Ichthyosis Discussion Sessions

On Saturday 27th March 2021 members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise on ear care. Read more

Hair and Scalp Care in Ichthyosis Discussion

Do you have questions about Hair and Scalp Care in Ichthyosis? We invite you to participate in a Zoom session with us, Consultant Dermatologists and Dermatology Nurses on Saturday 8th May at 10.00am BST. Read more

Latest

Online Virtual Children's Camp

To bring together our younger members we are hosting an online virtual camp for children aged 16 years and under on Saturday 15th May 2021 at 11am (BST) via Zoom.
Summary of Ear Care in Ichthyosis Discussion Sessions

On Saturday 27th March 2021 members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise on ear care.
Funding Ichthyosis Related Research

We would like to know which areas of research are of most interest to you, and what type of research you would like to see funded.
25th Anniversary Logo Competition

2022 is the ISG's 25th Anniversary Year and we'd like you to help us design a logo we will use throughout this celebratory year.

New product - Udrate

Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.
Accessibility
Seasonal Winter Get Together

Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz.
Donate

As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.
Privacy Policy
Udrate Cream

We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.
Summary of Ear Care in Ichthyosis Discussion Sessions

On Saturday 27th March 2021 members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise on ear care.
The Giving Room

If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.
Body Image Dissatisfaction

Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.
Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

Funding Ichthyosis Related Research

We would like to know which areas of research are of most interest to you, and what type of research you would like to see funded. Read more