Robyn’s story is one of joy, resilience, and possibility - proof that with the right support and a lot of determination, children with ichthyosis can live life boldly and without limits. Read more
Daniel’s story is one of courage, honesty, and self-belief - showing that even in the face of misunderstanding, you can still choose to live life your own way. Read more
I'm organising this challenge/event to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition. This is the condition that a pupil in our 6th form has. Read more
Rosemary’s story is raw, direct, and deeply human - reminding us that behind every visible difference is a life just as rich, complex, and worthy of connection as any other. Read more
Explore Paige's journey with ichthyosis, embracing individuality and strength while overcoming life's challenges. Read more
Elliot’s story highlights the resilience needed to live with ichthyosis and the challenges of daily skin care. He hopes people will look beyond his skin and better understand the impact of the condition. Read more
Anthony’s story is one of determination, honesty, and quiet strength - showing that ichthyosis may shape daily life, but it doesn’t limit what’s possible. Read more
Anna’s story highlights the resilience needed to live with ichthyosis and the daily reality of managing her skin. She hopes people will look beyond appearances and better understand the condition. Read more
Ibrahim’s story is one of confidence, family, and quiet determination - showing that with the right support, children with ichthyosis can thrive in their own way. Read more
Daniel’s story is one of honesty, resilience, and adaptability - showing that even when something is constant and challenging, it’s still possible to find ways to cope, connect, and keep going. Read more
Nelly’s story is one of independence, honesty, and positivity - showing that with determination and support, life can be lived fully and on your own terms. Read more
Giving people with ichthyosis, parents, and caregivers a platform to share their stories through a podcast series. Read more
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David Coker joins this podcast to talk about his life with Erthrokeratoderma Variabilis (EKV) and the importance of the Ichthyosis Support Group. Read more
Lesley shares her and her child’s experiences with ichthyosis, a change in diagnosis from Ichthyosis vulgaris to a type of Palmoplantar Keratoderma (PPK), family genetics, school challenges, and the resources found through the Ichthyosis Support Group. Read more
Since our gorgeous grandson was born just over 13 years ago we have relied on the ISG for support and have made lifelong friends as part of the 'Ichthyfam'. Everyone with ichthyosis deserves this support! Read more
Read our reflection on another successful ISG Family Conference, a supportive, informative event connecting the ichthyosis community across generations. Read more
A dermatologist's perspective on why UK dermatology wait times are long and how you can help. Read more
Information about applying for a research grant or funding from the Ichthyosis Support Group Read more
The residential activity camps are designed to be exciting and fun whilst encouraging social interaction and promoting personal development for children affected by ichthyosis aged 8-16 years. Read more
Henry’s story is one of persistence, happiness, and small but meaningful victories - showing how much strength can be found in everyday moments. Read more
Ichthyosis Support Group (ISG) is the UK charity for everyone with ichthyosis and their families. We work hard to raise public awareness and understanding of ichthyosis and campaign for better medical care. Too often ichthyosis is not recognised as a serious and painful medical condition by health commissioners and policy makers. Read more
Ichthyosis Awareness Cards from the Ichthyosis Support Group (ISG) are designed to help individuals living with ichthyosis easily explain their condition to others. Read more