Ichthyosis Support Group - People who care about ichthyosis

Mandy Aldwin-Easton

Medical and Communications Manager Read more

Shop landing

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ISG Pre and Primary Schools Pack

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Educational Health and Care Plan Discussion and Q&A

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Members Events 2024

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Treatments Used in Ichthyosis

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Non Bullous Ichthyosis (CIE) Factsheet

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Eye Management in Ichthyosis

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Get help

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Inheritance of Ichthyosis Factsheet

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Lamellar Ichthyosis Factsheet

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Dealing With Doctors

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Why People With Ichthyosis Should See a Consultant Dermatologist

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Are Bandages Useful for Treating Ichthyosis?

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Harlequin Ichthyosis Factsheet

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Genetic Testing

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Netherton Syndrome Factsheet

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Ichthyosis Vulgaris and Acquired Ichthyosis Factsheet

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Rare Ichthyoses Factsheet

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Erythrokeratoderma Variabilis (EKV) Factsheet

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X-linked Ichthyosis Factsheet

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Bullous Ichthyosis (BIE, EHK, EI) Factsheet

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Guide for Carers and Teachers

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Make a Donation

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Educational Health and Care Plan Discussion and Q&A

Do you have questions about EHCPs? Register and join us online.
Members Events 2024

Put these dates in your calendar to join our member events in 2024
Positive Data Revealed in Quoin Pharma's Netherton Syndrome Study

Quoin, a specialty pharmaceutical company focused on rare and orphan diseases, announces additional positive clinical data from its ongoing open-label study evaluating the safety and efficacy of QRX003 as a potential treatment for Netherton Syndrome (NS).
Dr Fiona Browne

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Treatments Used in Ichthyosis
Vitamin D

Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.
New product - Udrate

Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.
Palmoplantar Keratoderma (PPK)
Ichthyosis Overview
X-linked Ichthyosis
Harlequin Ichthyosis
Inheritance of Ichthyosis Factsheet
Eye Management in Ichthyosis
Udrate Cream

We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.