Research Funded By The ISG

Netherton syndome research

Gene Therapy for genetic skin disease Netherton syndrome Read more

The Ichthyosis Support Group (ISG) was delighted to team up with the British Skin Foundation (BSF) to award a joint grant of £10,000 towards research into helping individuals living with ichthyosis. Read more

Latest

25th Anniversary Logo

2022 is the ISG's 25th Anniversary Year and we asked you to help us design a logo to use throughout this celebratory year. We have a winner!
Summary of Ear Care in Ichthyosis Discussion Sessions

On Saturday 27th March 2021 members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise on ear care.
Udrate Cream

We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.
A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

Participants needed for a study which aims to better understand the frequency and severity of distress associated with these conditions, and to try and understand what might contribute to this.