Research Funded By The ISG

Netherton syndome research

Gene Therapy for genetic skin disease Netherton syndrome Read more

The Ichthyosis Support Group (ISG) was delighted to team up with the British Skin Foundation (BSF) to award a joint grant of £10,000 towards research into helping individuals living with ichthyosis. Read more

Latest

Spinnaker tower abseil for the Ichthyosis Support Group

I'm setting myself this challenge of abseiling down the spinnaker tower to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition.

Climb Snowdon Challenge

Tick 'Climb a Mountain' off on your bucket list? Join us for a challenge to remember on 2nd May 2021.

Online ISG Family Day 2020 - Saturday 26th September

Online interactive group discussion sessions providing support to those affected by ichthyosis.

Mental Health of Individuals With Facial Differences

Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others.

Accessibility

Donate

As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.

Privacy Policy

Body Image Dissatisfaction

Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.

The Giving Room

If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.

Cookie Policy

Example - Our impact

Inspire visitors with all the amazing change you've achieved. It's your chance to show off!

Meet our members

Some of our members have generously shared their personal stories of living with ichthyosis. These stories feature many types of ichthyosis from a wide range of people.

Example - Story/testimonial tips

Inspire visitors with real stories that humanise the impact you have, then call them to action

Raising awareness with Theo

Colour Theo in to raise awareness for Ichthyosis Awareness Month and display him in your windows alongside your rainbows.