Skip over main navigation
  • Sign up
  • Log in
  • Basket: (0 items)
Ichthyosis Support Group - People who care about ichthyosis
  • Search
  • Facebook
  • Twitter
Become a member Contact Us Donate
Menu
  • About Us
    • What We Do
    • Our Impact
    • Where We Work
    • History
    • Awards
    • Our Team
      • Trustees
      • Staff
  • What Is Ichthyosis
  • Caring For Ichthyosis
    • Condition Information
    • Inheritance & Genetics
    • Treatments
    • Parents
    • Talking to Your Doctor
    • Prescribing Issues
    • General Information
  • Get Help
    • Become A Member
    • Member Stories
    • Helpline
    • Other Sources Of Help
  • Support Our Work
    • Make a Donation
    • Fundraise for Us
      • Set Up A Fundraising Page
      • Our Fundraisers
    • Fundraising Ideas
      • Online Fundraising
      • Corporate Charity Support Pack
      • Fundraising Pack
      • Play Unity Lottery!
    • Raise Awareness
      • Raising Awareness
      • Ichthyosis Awareness Month (IAM)
      • Share Your Story With The Media
    • Volunteer
    • Corporate Support
  • Events
    • Member Events
    • Fundraising Events
  • Latest
    • Latest News
    • ISG Newsletters
    • Research
      • Ichthyosis Related Research
      • Participate In Research
      • Research Funded By The ISG
    • In The Media
      • Tell Your Story
      • Case Studies
  • Shop
  • Admin
    • Log in
  • Basket: (0 items)
  • Development of a needs assessment tool for caregivers of children affected with ichthyosis

    Development of a needs assessment tool for caregivers of children affected with ichthyosis

    Participants wanted to take part in an online survey for caregivers of children affected with ichthyosis Read more

  1. Home
  2. Participate in research

Participate in research

Development of a needs assessment tool for caregivers of children affected with ichthyosis

Development of a needs assessment tool for caregivers of children affected with ichthyosis

Participants wanted to take part in an online survey for caregivers of children affected with ichthyosis Read more

Published: 25th November, 2020

Author: Liz Dale

Related topics:
  • Homepage-New-Stories
  • Participate in research
Mental Health of Individuals With Facial Differences

Mental Health of Individuals With Facial Differences

Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others. Read more

Published: 31st July, 2020

Updated: 25th November, 2020

Author: Liz Dale

Related topics:
  • Participate in research
  • Latest News
Body Image Dissatisfaction

Body Image Dissatisfaction

Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis. Read more

Published: 28th May, 2020

Updated: 24th November, 2020

Author: Liz Dale

Related topics:
  • Participate in research
  • Latest News
Lamellar ichthyosis research

Lamellar ichthyosis research

A clinical trial has started in the UK for Lamellar ichthyosis, initially for adults over 18. Read more

Published: 5th May, 2020

Updated: 28th May, 2020

Author: Mandy Aldwin

Related topics:
  • Participate in research
  • Clinical Trials
Research Study for Ichthyosis Caregivers

Research Study for Ichthyosis Caregivers

Your input is needed to develop a first needs assessment tool for ichthyosis caregivers. Read more

Published: 5th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin

Related topics:
  • Participate in research
Does your skin condition affect your confidence?

Does your skin condition affect your confidence?

Study investigating if confidence in social situations is affected by your visible skin difference. Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin

Related topics:
  • Participate in research
X linked ichthyosis personality survey

X linked ichthyosis personality survey

Researchers are looking for males with X linked ichthyosis or their non affected brothers to take part in a short online survey looking at personality. Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin

Related topics:
  • Participate in research
Emotional and Psychological effects of living with a skin condition

Emotional and Psychological effects of living with a skin condition

Living with a skin condition is difficult, but how many people acknowledge the emotional and psychological impact it has on the person affected and their loved ones? Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin

Related topics:
  • Participate in research
Visible Difference, Intimacy and Relationships

Visible Difference, Intimacy and Relationships

Researchers at the Centre for Appearance Research are conducting a research study examining the experiences of intimacy amongst people who have visible difference. Read more

Published: 6th May, 2020

Updated: 22nd May, 2020

Author: Mandy Aldwin

Related topics:
  • Participate in research
X Linked Ichthyosis Research – Female carriers wanted!

X Linked Ichthyosis Research – Female carriers wanted!

Researchers at Cardiff University are looking for female carriers of genetic changes associated with X-linked ichthyosis (XLI) to take part in a short online survey looking at personality and mental health. Read more

Published: 6th May, 2020

Updated: 22nd May, 2020

Author: Mandy Aldwin

Related topics:
  • Participate in research
Back to top

Showing 10 of 10

Latest

  • Development of a needs assessment tool for caregivers of children affected with ichthyosis

    Development of a needs assessment tool for caregivers of children affected with ichthyosis

    Participants wanted to take part in an online survey for caregivers of children affected with ichthyosis

  • WaterSure Scheme

    WaterSure Scheme

    WaterSure is a scheme which helps people on specific benefits on a water meter (or waiting for one to be installed) with their water bills.

  • Seasonal Winter Get Together

    Seasonal Winter Get Together

    Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz.

  • New product - Udrate

    New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.

Most read

  • New product - Udrate

    New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.

  • Accessibility

  • Seasonal Winter Get Together

    Seasonal Winter Get Together

    Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz.

  • Donate

    Donate

    As a registered charity any donation you wish to pledge will be gratefully received and will benefit the support group and its ability to help all the people who are affected by this family of conditions.

  • Privacy Policy

  • Body Image Dissatisfaction

    Body Image Dissatisfaction

    Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis.

  • The Giving Room

    The Giving Room

    If you are using video platforms such as Zoom or Teams now you have the opportunity to raise money for us at the same time with our virtual backgrounds.

  • Cookie Policy

  • Example - Our impact

    Inspire visitors with all the amazing change you've achieved. It's your chance to show off!

  • Development of a needs assessment tool for caregivers of children affected with ichthyosis

    Development of a needs assessment tool for caregivers of children affected with ichthyosis

    Participants wanted to take part in an online survey for caregivers of children affected with ichthyosis

Seasonal Winter Get Together

Seasonal Winter Get Together

Come together virtually for our ‘Seasonal Winter Get Together’. A fun filled evening of entertainment including talent competition, fancy dress and quiz. Read more

Published: 20th November, 2020

Author: Mandy Aldwin

Related topics:
  • Latest News
  • Homepage-Latest-Events

Make a donation

Please select a donation amount (required)
Set up a regular payment Donate

Find us

Postal Address
Ichthyosis Support Group
PO Box 1242
Yateley
GU47 7FL

+44 (0)845 602 9202
[email protected]

Links

  • Sitemap
  • Accessibility
  • Terms & Conditions
  • Privacy Policy

Useful links

  • General Enquiries Form
  • Become A Member Form

© Copyright 2015 Ichthyosis Support Group (ISG) Registered Charity Number: 1142457
Ichthyosis Support Group is a company limited by guarantee | Registered in England and Wales | Company registration number 7609904