Carleen Walsh, PhD Researcher invites caregivers of children affected by ichthyosis to test a new needs assessment e-tool to make sure it is reliable and valid. Read more
Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others. Read more
Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis. Read more
Participants needed for a study which aims to better understand the frequency and severity of distress associated with these conditions, and to try and understand what might contribute to this. Read more
A clinical trial has started in the UK for Lamellar ichthyosis, initially for adults over 18. Read more
Your input is needed to develop a first needs assessment tool for ichthyosis caregivers. Read more
Study investigating if confidence in social situations is affected by your visible skin difference. Read more
Researchers are looking for males with X linked ichthyosis or their non affected brothers to take part in a short online survey looking at personality. Read more
Living with a skin condition is difficult, but how many people acknowledge the emotional and psychological impact it has on the person affected and their loved ones? Read more
Researchers at the Centre for Appearance Research are conducting a research study examining the experiences of intimacy amongst people who have visible difference. Read more
Researchers at Cardiff University are looking for female carriers of genetic changes associated with X-linked ichthyosis (XLI) to take part in a short online survey looking at personality and mental health. Read more