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  • participate-in-research
  1. Home
  2. Participate in research

Participate in research

Mindfulness research study

Mindfulness research study

Are you a parent or carer of a child with ichthyosis aged under 16 years old? Would you like to participate in this research by taking part in an online mindfulness course? Read more

Published: 24th May, 2022

Updated: 22nd June, 2022

Author: Mandy Aldwin-Easton

An investigation into memory, cognitive function and mood in ichthyosis

An investigation into memory, cognitive function and mood in ichthyosis

The effects of genetic changes associated with ichthyosis on memory, cognition and mood in being investigated, and we need you to to participate in the latest research. Read more

Published: 22nd June, 2022

Author: Mandy Aldwin-Easton

Recruiting participants for online group interview study

Recruiting participants for online group interview study

Are you an English-speaking adult (18+) with a skin condition? Would like to take part in an online group activity to develop a smartphone app supporting people to live well with skin conditions? Read more

Published: 26th February, 2022

Updated: 22nd June, 2022

Author: Mandy Aldwin-Easton

A Needs Assessment Tool for Caregivers of Children with Ichthyosis

A Needs Assessment Tool for Caregivers of Children with Ichthyosis

Carleen Walsh, PhD Researcher invites caregivers of children affected by ichthyosis to test a new needs assessment e-tool to make sure it is reliable and valid. Read more

Published: 27th July, 2021

Updated: 10th November, 2021

Author: Mandy Aldwin-Easton

Mental Health of Individuals With Facial Differences

Mental Health of Individuals With Facial Differences

Participants requested for a study to investigate whether the mental health of those with facial differences is affected by the way they interpret the negative reactions of others. Read more

Published: 31st July, 2020

Updated: 30th March, 2021

Author: Liz Dale

Body Image Dissatisfaction

Body Image Dissatisfaction

Participants needed for a study exploring experiences and body image dissatisfaction in association with dermatological conditions including ichthyosis. Read more

Published: 28th May, 2020

Updated: 30th March, 2021

Author: Liz Dale

A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

Participants needed for a study which aims to better understand the frequency and severity of distress associated with these conditions, and to try and understand what might contribute to this. Read more

Published: 19th February, 2021

Updated: 30th March, 2021

Author: Mandy Aldwin-Easton

Lamellar ichthyosis research

Lamellar ichthyosis research

A clinical trial has started in the UK for Lamellar ichthyosis, initially for adults over 18. Read more

Published: 5th May, 2020

Updated: 28th May, 2020

Author: Mandy Aldwin-Easton

Research Study for Ichthyosis Caregivers

Research Study for Ichthyosis Caregivers

Your input is needed to develop a first needs assessment tool for ichthyosis caregivers. Read more

Published: 5th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin-Easton

Does your skin condition affect your confidence?

Does your skin condition affect your confidence?

Study investigating if confidence in social situations is affected by your visible skin difference. Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin-Easton

X linked ichthyosis personality survey

X linked ichthyosis personality survey

Researchers are looking for males with X linked ichthyosis or their non affected brothers to take part in a short online survey looking at personality. Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin-Easton

Emotional and Psychological effects of living with a skin condition

Emotional and Psychological effects of living with a skin condition

Living with a skin condition is difficult, but how many people acknowledge the emotional and psychological impact it has on the person affected and their loved ones? Read more

Published: 6th May, 2020

Updated: 23rd May, 2020

Author: Mandy Aldwin-Easton

Visible Difference, Intimacy and Relationships

Visible Difference, Intimacy and Relationships

Researchers at the Centre for Appearance Research are conducting a research study examining the experiences of intimacy amongst people who have visible difference. Read more

Published: 6th May, 2020

Updated: 22nd May, 2020

Author: Mandy Aldwin-Easton

X Linked Ichthyosis Research – Female carriers wanted!

X Linked Ichthyosis Research – Female carriers wanted!

Researchers at Cardiff University are looking for female carriers of genetic changes associated with X-linked ichthyosis (XLI) to take part in a short online survey looking at personality and mental health. Read more

Published: 6th May, 2020

Updated: 22nd May, 2020

Author: Mandy Aldwin-Easton

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Showing 10 of 14

Latest

  • An investigation into memory, cognitive function and mood in ichthyosis

    An investigation into memory, cognitive function and mood in ichthyosis

    The effects of genetic changes associated with ichthyosis on memory, cognition and mood in being investigated, and we need you to to participate in the latest research.

  • Professor Sara Brown

  • Mindfulness research study

    Mindfulness research study

    Are you a parent or carer of a child with ichthyosis aged under 16 years old? Would you like to participate in this research by taking part in an online mindfulness course?

  • ISG Cake Toppers

    ISG Cake Toppers

    Buy Ichthyosis Support Group and 25th Anniversary cake toppers at a discounted rate from Edibilis.

Most read

  • Vitamin D

    Vitamin D

    Vitamin D is a vitamin which is essential for our health and well-being. Individuals with ichthyosis, in particular ARCI, including CIE/lamellar/harlequin ichthyosis, and epidermolytic ichthyosis, are at risk of Vitamin D deficiency.

  • New product - Udrate

    New product - Udrate

    Following the discontinuation of Calmurid, Udrate is the new product available containing Urea and Lactic acid.

  • Treatments Used in Ichthyosis

  • Ichthyosis Overview

  • X-linked Ichthyosis

  • Eye Management in Ichthyosis

  • Harlequin Ichthyosis

  • Udrate Cream

    We have received information about a new product similar to the discontinued Calmurid, and the following is for your information and guidance.

  • Lamellar Ichthyosis

  • Inheritance of Ichthyosis Factsheet

ISG's 25th Anniversary Year Appeal

ISG's 25th Anniversary Year Appeal

2022 is the ISG's 25th Anniversary Year and to celebrate this we are aiming to raise a minimum of £25,000. We need your help! Here you can make a donation, start a regular donation or set up a fundraising page.. Read more

Donate Fundraise

Published: 14th August, 2021

Updated: 10th April, 2022

Author: Mandy Aldwin-Easton

25th Anniversary Year Merchandise

25th Anniversary Year Merchandise

Free delivery on orders to help you raise awareness and funds for ichthyosis with our very special anniversary merchandise and collection box Read more

Published: 14th April, 2022

Updated: 28th April, 2022

Author: Mandy Aldwin-Easton

An investigation into memory, cognitive function and mood in ichthyosis

An investigation into memory, cognitive function and mood in ichthyosis

The effects of genetic changes associated with ichthyosis on memory, cognition and mood in being investigated, and we need you to to participate in the latest research. Read more

Published: 22nd June, 2022

Author: Mandy Aldwin-Easton

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